I’ve had a happy camping post planned for over two weeks now,
and a Halloween one in my mind too. I
just haven’t gotten around to posting either of them yet, and now instead of a
happy, life with baby post, I have something a little more raw to offer.
I will, however, break up the not-so-happiness of this post with Halloween pictures |
Without weekly therapy sessions to constantly remind me of
Juniper’s lymphedema, and now especially that the weather is cooler, and with
the wrapping and massage now being our normal, it’s kind of easy to forgot
about it. Maybe the forgetting about it
made me lazy, or complacent, I’m not sure.
Last Friday afternoon, after Daniel packed up for a weekend trip with his
dad and brother, I had to take Juniper to the ER because I suspected that she
had cellulitis in her leg.
I’d seen a little red dot on her thigh for a day or two, but
I didn’t do anything about it. I didn’t
put Neosporin on it like you’re supposed to, I didn’t circle the area with a
pen to see if it was getting bigger, I just ignored it like I would if I had
something similar on my own body. Well,
my body and Juniper’s body don’t work the same way. I can get cuts, scrapes, and bites without
them turning into a major, rapidly spreading infection; Juniper can’t. I am hardly a germophobe. I get a little obsessive about hand washing
when my students are sick, but beyond that I don’t really worry too much about
dirt. As with all aspects of parenting,
Juniper is teaching me that I need to change my tune a little bit. Maybe the
cellulitis would have happened even if I put some Neosporin on that little red
dot, maybe it wouldn’t have. I do know that because of my wanting to avoid putting antibiotic ointment on every
little abrasion I now have a five-month old on a healthy dose of Kelfex for the
next week. Hindsight being 20-20
definitely makes me see that perhaps my apprehension over using Neosporin was a
little misguided.
We ended up at the ER after a series of events that would
have perhaps been comic if they hadn’t been so un-funny. Like I said, I noticed the red spot on
Juniper’s thigh for a few days, but it didn’t change, so I thought all was
fine. On Friday when I picked her up
from work and changed her diaper, I saw that there was no longer just one dot,
but many dots, along with general redness and the area was hot. I spent a few minutes wishing it away and
telling myself it was no big deal before I faced the situation at hand: I would be driving off the mountain to see a
Dr. at our ped’s office, an urgent care, or the ER. After one really unhelpful receptionist and
one more helpful receptionist, we were on our way off the hill to a unknown
destination. Long story short: we ended
up at the ER because of the time and insurance, where I got to pay my pretty
expensive ER copay to tell the doctor what was wrong with my daughter so we could
get a prescription for antibiotics.
It’s not that the ER staff were unhelpful, they were
helpful, but lymphedema is a rare thing to begin with, and pretty much unheard
of in a baby.
Being an advocate for a little person who can’t advocate for
herself is hard work, and I’m not so good at it yet. At our four-month well baby visit I spoke
with our pediatrician about having antibiotics on hand in case of cellulitis,
but I didn’t demand it, and we didn’t get the prescription. It’s funny, because I was worried that I
wouldn’t know what to look for if she did get cellulitis. I think I don’t give myself enough credit, because on Friday it was
obvious to me that cellulitis was beginning.
I did google it, and the images were pretty spot on for what Juniper’s
leg looked like. We have our six
month(!) well-visit coming up this month and I am going to demand that we be
given a prescription for antibiotics to have on file so that we do not have to
repeat Friday’s events again. We are so
trained to be nice and polite all of the time, and it’s really hard to break
those habits- especially with doctors who are supposed to be the experts. I really like our pediatrician, and he is
totally open to us, and knows that he doesn’t know everything about lymphedema,
but it is still hard to be pushy. So
basically I failed my daughter in this case because I’m not clean or pushy
enough.
Juniper is doing fine, it was actually only after she'd been on antibiotics that
I realized how un-fine she had been acting for a few days. She is such a happy baby that her being fussy
is very low on the fussy scale, and I kind of thought she was teething. Looking back, I realize that something else
(cellulitis) was going on, and she is obviously feeling much better now.
Daniel ended up looking like a Jesus/Dumbledore hybrid, but I think Juniper's nest stroller made up for it. Photo by B. McMenamin |
She's off the antibiotics now, and I have to say that I am incredibly thankful for modern medicine, which I definitely have not always been. I am having a hard time not rushing out to buy fish antibiotics to stockpile for the apocalypse, but that, friends, is another post for another time.
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